Meet the 2023 Patient Management Council Customers!

Apr12,2023

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The Affected individual Management Council (PLC) is built up of Social Well being Award winners and Wellness Union Individual Leaders. The PLC allows Wellness Union with party organizing and brings the individual viewpoint into several various jobs. This critical team also encourages engagement throughout Health Union communities.

Fulfill the 2023 PLC users underneath.

Social Wellness Award winners

Jill King

Jill King: Rookie of the Yr

Jill navigates her everyday living with non-radiographic axial spondyloarthritis by way of writing and discovering group. She overtly discusses incapacity and health issues procedures on social media to connect with other folks. Jill also is effective to highlight the consequences of incapacity on mental health and established the to start with disability advocacy team at Georgia Southern University.

Erica Carrasco

Erica Carrasco (aka Achy Smile): Inventive Contributor

Erica is a fierce migraine advocate for her family members and other people. She has hemiplegic migraine, and her 2 young ones have ocular and vestibular migraine. She has been a element of Headache on the Hill, has advocated for doctor schooling, and is a lover of the American Migraine Basis and the Association of Migraine Disorders.

Elle Cole

Elle Cole: Caregiving Champion

Elle is a mom of twin girls, a single of whom lives with sickle cell disease and variety 1 diabetes. She is an advocate for both disorders as well as a experienced author, speaker, and educator. She produces the podcast VitaminSC3 with the Sickle Cell Group Consortium to share affected person tales and bring hope.

Aaron Blocker

Aaron Blocker: Groundbreaking Researcher

Aaron life with Crohn’s condition and an ultra-exceptional genetic bone disorder named hypophosphatasia. He is a individual advocate for both equally, and his intention is to amplify the individual voice. He has established an on the web group of much more than 30,000 individuals affected by IBD. Aaron is also a scientific researcher and works in healthcare.

Natalie Hayden

Natalie Hayden: Neighborhood Cultivator

Natalie is the author of a lengthy-standing site about her lifestyle and activities with Crohn’s ailment. She specially enjoys sharing stories about being pregnant and motherhood that can deliver comfort to many others. She has a lot of advocacy roles in pharmaceutical study, social health and fitness, and the Crohn’s and Colitis Basis, between other corporations.

Mildred Velez

Mildred Velez, Fibromyalgia Care Modern society of The us (FCSA): Greatest Staff

The FCSA was established in 2015 by Mildred Velez. Mildred, who life with fibromyalgia, discovered a hole in existing nonprofit activity and desired to give products and services to everybody in have to have. The FCSA’s Middle of Excellence supports scaled-down teams of folks with fibromyalgia with workshops and help teams all around suffering, psychological health, and symptom administration.

Rachel Hill

Rachel Hill (aka The Invisible Hypothyroidism): Social Media Master

Rachel is an award-successful writer of various textbooks as nicely as a speaker, author, and thyroid client advocate. She has labored with the National Academy of Hypothyroidism as perfectly as lots of podcasts and very well-recognised web sites. She covers all features of thyroid condition, which includes mental health and fitness, fertility, associations, and far more.

Ella Balasa

Ella Balasa: Healthcare Collaborator

Ella has been residing with cystic fibrosis since she was a toddler, top to numerous hospitalizations. Irrespective of having 25 % lung purpose, she has not slowed down. She is an avid individual advocate, author, and scientist. She has served on investigation committees and planned conferences for the CF group.

Melissa Talwar

Melissa Talwar, Guidance Fibromyalgia: Advocacy Trailblazer

Melissa is a longtime fibromyalgia advocate and group wellbeing coach. She has constructed the nonprofit Assistance Fibromyalgia Network, which focuses on team coaching, education, research assist, and advocacy education. She is a board-accredited functional drugs overall health coach, also holds other certifications, and has an desire in biohacking as a way to wellness.

Kristal Kent

Kristal Kent: Lifetime Achievement

Kristal is an Military veteran navigating daily life with fibromyalgia. She is an advocate in the chronic ache, fibromyalgia, and veteran communities. Significantly of her work is in the schooling, legislation, health care legal rights, and disability spaces. She serves on a lot of boards and panels, like at the Cleveland Clinic and the Fibromyalgia Care Modern society of The usa.

Health and fitness Union Patient Leaders

Racquel H. Dozier

Racquel H. Dozier

Just after suffering from a absence of guidance, problems acquiring information, and her have lifetime-threatening knowledge with lupus, Racquel established Lupus In Colour. Lupus In Colour caters to the desires of people today of all colours of the rainbow who have lupus, both in-person and throughout the earth. Racquel also is an author and has labored in the social function house.

Diana Castaldini

Diana Castaldini

Diana is a freelance writer and editor dwelling with ankylosing spondylitis. She has created for lots of media retailers and wellness and wellness brand names. Diana is passionate about the worlds of nutrition, wellness, and lifestyle drugs. She is also intrigued in the results of pressure and the gut on autoimmune health conditions.

Jackie English

Jackie English

Jackie has been living with alpha 1 antitrypsin deficiency for about a 10 years. She was a certified nursing assistant (CNA) for far more than 20 several years. Jackie began an alpha 1 nonprofit with a good friend and has served as an advocate and assistance team leader for these in the local community.

Davina “Dee” Conner

Davina “Dee” Conner

Davina is an advocate, activist, and award-winning podcast host. She will work on HIV prevention obtain campaigns and has quite a few professional roles dedicated to dispelling stigma close to residing with HIV. Dee hosts the podcast Pozitively Dee Discussion and began the nonprofit Poz Haven Foundation to supply psychological health and fitness assistance.

Tatiana Corbitt

Tatiana Corbitt

Tatiana struggled with the indications of kind 1 narcolepsy through her graduate scientific tests and the begin of her experienced occupation. She researched the positive aspects of support puppies and properly trained her very own from when it was 8 months aged. She strives to share her lifestyle with narcolepsy to enable other people operate through restrictions.

Isela Devora

Isela Devora

Isela started off acquiring signs and symptoms of hidradenitis suppurativa (HS) when she was a teenager. She aims to unfold consciousness of HS and to teach other people how to use their voice to speak about their encounters, way too. In her community, she works as a social employee and advocate for victims of criminal offense.

Charles Anthony Ulloa

Charles Anthony Ulloa

Charles Anthony served as his mother’s principal caregiver while she battled bladder cancer. He life each and every working day #StrongLikeSusan. Exterior of his health advocacy, he is a fierce economic literacy advocate. Charles is also passionate about wellness alternatives like Reiki and crystal healing.

Vickie Wilkerson

Vickie Wilkerson

Vickie lives with the two psoriasis and psoriatic arthritis. She likes to say, “Psoriasis is the reward that keeps on offering.” She is a psoriasis advocate, serving as a neighborhood ambassador and a single-to-a person mentor for the National Psoriasis Foundation.

Ellen Reed

Ellen Reed

Ellen is a champion for compassionate conclusion-of-life care, and she founded a personal follow in grief and reduction. Her attempts awarded her the Nursing Distinguished Alumni Award in 2020 from NYU’s Rory Meyers School of Nursing. Ellen was identified with metastatic ovarian most cancers in 2018. She then posted a ebook about her job and therapeutic.

Lauren Dykovitz

Lauren Dykovitz

Following her mother, Jerie, was identified with Alzheimer’s disease, Lauren took on the purpose of caregiver. She served in this job for a ten years and aims to share her ordeals to enable help others. She writes for her personal blog site as perfectly as many other media retailers. She has also posted two publications about her journey.

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